I'm SO sorry you are going through this. I wish i could do something for you.
Sickle Cell Anemia and Pregnancy
April 08, 2008
I am currently a little over 4 weeks pregnant, but I am in the midst of a sickle cell crisis. I do not want to take the meds because of the harm that it can do, but the pain is unbearable. My hematologist feels like I will miscarry because of what my body is going through. I am ok with this because I always knew that there was a chance of this happening. If the pregnancy makes it through this crisis and I have another later own, can it cause damage to the baby? Also, should I continue ttc?
Here is more infor about it everyone and what happens during pregnacny:
For a woman with sickle cell anemia who is interested in having children, it is ideal that she pursues supportive counseling and healthcare before she conceives. She needs both a high-risk obstetrician and a hemotologist. If the pregnancy is a surprise, she should seek medical attention as soon as she suspects she might be pregnant.
Women who are pregnant with sickle cell have more frequent sickle cell crises due to the extra stress of pregnancy. A sickle crisis will occur in about a third of pregnancies. Pregnancy is an intense burden on a woman's body, and this incredible strain can easily exacerbate the sickling of red blood cells. When these cells cluster together, they can build up in various organs throughout the body, leading to intense pain. Furthermore, because blood vessels can become blocked from all the cells, body tissues may be deprived of their oxygen and can die. When this happens, the body's first response is to send blood to be most important organs in the body in order to survive and the uterus isn't one of them, so if a woman is pregnant, her sickle cell anemia can deprive her fetus of oxygen and nutrients.
The pregnancies are at higher risk of spontaneous abortion, premature labor, pseudo-toxemia and cesarean section. The fetuses are more likely to have growth lags, and more trouble with the stresses of labor and delivery. After the birth, all women are more likely to have infections and blood clots, but the risk for sickle cell mothers is even greater.
But don't worry too much. There's lots you and your doctor can do to prevent and correct these problems. Pregnant women with sickle cell are almost always anemic at the first pre-natal visit. Folic acid is given routinely. This is just the same as in non-sickle cell pregnancies, it is simply more important in sickle cell pregnancies. The norm of giving iron supplements to pregnant women should not be followed without lab testing to show that is indicated. Sickle cell patients may be overloaded with iron because of frequent past transfusions. Morning sickness poses extra risks for women with sickle cell. Morning sickness can lead to dehydration and dehydration causes sickle cell crisis. Tests for urinary tract infection will be done at each pre-natal visit, as women with sickle cell are at increased risk for infection.
At the first visit, a pregnant woman with sickle cell should have the following tests: complete blood count, reticulocyte count, hemoglobin electrophoresis (for her partner as well), liver function tests, hepatitis B and C, blood group and antibody typing, rubella antibodies, syphilis test.
For a woman with sickle cell anemia who is interested in having children, it is ideal that she pursues supportive counseling and healthcare before she conceives. She needs both a high-risk obstetrician and a hemotologist. If the pregnancy is a surprise, she should seek medical attention as soon as she suspects she might be pregnant.
Women who are pregnant with sickle cell have more frequent sickle cell crises due to the extra stress of pregnancy. A sickle crisis will occur in about a third of pregnancies. Pregnancy is an intense burden on a woman's body, and this incredible strain can easily exacerbate the sickling of red blood cells. When these cells cluster together, they can build up in various organs throughout the body, leading to intense pain. Furthermore, because blood vessels can become blocked from all the cells, body tissues may be deprived of their oxygen and can die. When this happens, the body's first response is to send blood to be most important organs in the body in order to survive and the uterus isn't one of them, so if a woman is pregnant, her sickle cell anemia can deprive her fetus of oxygen and nutrients.
The pregnancies are at higher risk of spontaneous abortion, premature labor, pseudo-toxemia and cesarean section. The fetuses are more likely to have growth lags, and more trouble with the stresses of labor and delivery. After the birth, all women are more likely to have infections and blood clots, but the risk for sickle cell mothers is even greater.
But don't worry too much. There's lots you and your doctor can do to prevent and correct these problems. Pregnant women with sickle cell are almost always anemic at the first pre-natal visit. Folic acid is given routinely. This is just the same as in non-sickle cell pregnancies, it is simply more important in sickle cell pregnancies. The norm of giving iron supplements to pregnant women should not be followed without lab testing to show that is indicated. Sickle cell patients may be overloaded with iron because of frequent past transfusions. Morning sickness poses extra risks for women with sickle cell. Morning sickness can lead to dehydration and dehydration causes sickle cell crisis. Tests for urinary tract infection will be done at each pre-natal visit, as women with sickle cell are at increased risk for infection.
At the first visit, a pregnant woman with sickle cell should have the following tests: complete blood count, reticulocyte count, hemoglobin electrophoresis (for her partner as well), liver function tests, hepatitis B and C, blood group and antibody typing, rubella antibodies, syphilis test.
Thanks everyone!! Galaa, does your cousin's wife have sickle cell disease or the trait? There is a huge difference between the two. If she has the disease, what kind? I am currently in the hospital and we feel like I am going to be here for awhile. I have a ultrasound at about 11 or so, but I am not looking forward to it. I already told my DH that I do not want to know how many. It would just make the whole situation harder. I will keep you all updated on my status and the status of my lil bunny, lol!!!



April 08, 2008
I dont know anything about this - is this somehting that you always have and then have flare ups or something? Im sorry that you and DH have to go thru this - take care and keep me posted.
What did the doc say about taking the meds, can it harm the baby/babies?